Teenager from SG crowdfunds to pay for exams and face mysterious health condition

A family from the Jardim República neighborhood, in São Gonçalo, started an online fundraising campaign to try to help solve a problem that turned their lives upside down: a mysterious picture of health problems in their eldest daughter, Kayllane Bernardo, from 15 years. Since February, the teenager, who had no diagnosed illness, has had her routine paralyzed due to a series of sudden fainting spells and seizures.

Manicurist Bianca Faria, 34, Kayllane’s mother, says that the problem started suddenly on February 17th. “I was at my nail polish shop, in Inoã, when she fainted three times in a row at home. She was alone at home, with her brothers”, recalls her mother. The girl was rescued by a relative who lives nearby. “At first, as it was very hot that day and my cousin saw that her blood pressure was very low, we thought it was the heat”, says Bianca.

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In the same week, however, the scene was repeated, this time while Kayllane was at school. The girl had to be carried by a colleague to the coordination. On another occasion, she suddenly fainted while dancing in church. The frequency of episodes continued to increase and the first healthcare professionals to treat the young woman suspected a urinary infection.

Kayllane continued to get worse and ended up being hospitalized, transferred to a military polyclinic in Rio. “There they sent my daughter straight to the psychiatric ward. She started taking medication, seeing a psychologist. But the medication had no effect and she began to have also convulsions”, explains Bianca.

Since then, the situation has been the same and none of the tests determined the exact diagnosis of the young woman, whose entire routine was affected by the health problem. “My life has completely stopped. I feel really bad, because, in a way, the doctors are trying to help me, but even so, a 15-year-old teenager who wanted to be playing, having fun, going out, can’t do any of that. I feel sadder every day. I’ve been like this for four months and it hurts me a lot. I was a super active person”, says Kayllane, who lives with her parents and two younger brothers, Thiago and Miguel.

Every day, without exception, she faces successive episodes of fainting in a row, which begin suddenly. In addition, she often suffers from convulsive episodes. After some of them, she regains consciousness with failures in some senses; without seeing or hearing, for example. Because of this, she needs to be monitored 24 hours a day by her family.

“My mother stopped working to take care of me, because since I started fainting, I can no longer go out or be alone, not even to go to the bathroom. Going to school, doing the things I like, I don’t even think about it. My father is an app driver and a lot of the time he can’t work, because I feel sick and he ends up going to help me with my mother, once a week, I end up in the emergency room”, says the teenager.

Without concrete answers about the problem, Bianca and her husband, Paulo Maurício, 35 years old, have turned to both public and private networks to try to speed up their daughter’s diagnosis process. Some of the tests, however, are expensive and the Jardim República family has had difficulty reconciling the costs of the tests with the costs of medical monitoring, medication and the special diet that Kayllane has been following to prevent the weight loss she began to suffer. since the fainting started.

“My life came to a complete stop,” says Kayllane | Photo: Reproduction/Personal Archive

To try to raise the money needed for expenses, the family created an online fundraiser. The amounts can be donated through the link: https://www.vakinha.com.br/4655555. The expectation is to pay for exams and accelerate the discovery of the diagnosis to focus efforts on an effective treatment for the problem, as Kayllane explains.

“I want to be able to return to my normal life, to be able to study and graduate, to be able to return to my routine as a teenager who loves to have fun in a healthy way and I can’t. I want to be able to return to my routines, to be an active person again”, he concludes. the student.